From June through December of 2014 the Governor’s Office of Health Innovation and Transformation (GOHIT) convened Stakeholder Work Groups to support the development of recommendations for the Alliance for Health Innovation Plan and the 1115 waiver application. The Illinois Public Health Institute (IPHI), with support from the Illinois Framework, The Chicago Community Trust, and the Michael Reese Health Trust helped coordinate parts of the stakeholder feedback process which resulted in over 200 recommendations to transform Illinois’ healthcare and human service systems.
IPHI coordinated the process for the Data and Technology Work Group and the Long-term Services and Support Subcommittee and a diverse group of stakeholders, including
- Consumers of waiver services
- Advocates, parents and families of consumers
- Medical providers
- Service providers from behavioral health, social services, aging, developmental disabilities, home & community-based services
- State staff from the Department of Healthcare and Family Services, the Department of Human Services, the Department on Aging, and the Department of Public Health
- Health plans
- Community health centers
- Information managers and data stewards
These stakeholders participated through the use of conference calls, in-person meetings, webinars, polls and surveys resulting in recommendations around:
- Service Definitions & Provider Qualifications: the integration of 96 services within eight existing Home and Community Bases Services (HCBS) waivers and draft service definitions and provider qualifications for the 23 proposed services.
- Conflict-Free Case Management & Person-Centered Planning: the Balancing Incentives Program (BIP) Conflict-Free Case Management Protocol, the federal CMS HCBS Conflict of Interest regulations, a Consumer Bill of Rights, and a statement of intent for for the proposed approach for complying with CMS Person-Centered Planning regulations and transforming Illinois to a Person-centered Thinking system.
- Care Coordination: components and data elements for the Portable Care Plan and a framework for a Common Care Platform for the Integrated Delivery System Model Test.
Over 600 stakeholders across approximately 300 organizations provided feedback and were dedicated to the process for the 6 months. In December, IPHI submitted final recommendations on behalf of those stakeholders to GOHIT, along with a narrative and a one-page communications document that summarized the recommendations and feedback. The final recommendations will be placed into one final report and shared with the General Assembly, the new administration and the community of stakeholders.
It was recognized that stakeholders would play key roles in continuing the push for these recommendations in 2015, and critical players and stakeholder champions were identified. The champions are individuals and organizations who endorse the recommendations of the different Work Groups and support the continuation of work around these recommendations for improving healthcare services, delivery, management and coordination in Illinois. In addition to the stakeholders, both federal BIP and HCBS rule implementations are still relevant drivers that will require ongoing stakeholder engagement.
Overall, participants commended the process and felt that their input had been incorporated. The stakeholders are looking forward to see how all of this hard work and these final recommendations will impact the innovation and transformation of Illinois’s health systems.